Helping the Aging Parent Who Refuses Help

by, Dale Carter

We see our parents struggling with their living situation, and we have tried every way possible to talk with them about it, but they refuse to accept help in their home.  What can we do? On a high level, the mention of services brought into the home can make your parent think, “This is the first step to losing my independence. If this happens, what’s next?” Whether they consciously or unconsciously have this thought, they will want to fiercely grab on to the life they know and resist any change.

  • Your parent may treasure their privacy, so even the mention of bringing a home aide or visiting nurse into their home, may be unsettling.
  • Your parent may be financially conservative, wanting to be frugal and responsible. They’ve lived through the Great Depression. They see their health care costs rising, and the instability of world economy.

So, with those thoughts in mind, how can we approach the conversation in a more empathetic way?

  • Begin by listening to your parent. Have a relaxed conversation away from your homes, perhaps in a park or some other peaceful setting. You’ll be amazed at how this can break the cycle of a “stuck” conversation. Ask a big question like, “Mom, what has been the most difficult part of aging for you?” She’ll have to dig deep to answer that, and you’ll learn about her values, wishes and goals. And, you will then be able to find common ground and build trust as you work together in the future, in finding the right option for your parent.
  • Observe.  Become like a quiet shadow beside your parent. Envision yourself as a caring friend. Watch how your parent moves, what they struggle with, what makes them happy, how they interact with their friends and the outside world. Don’t let yourself be overwhelmed or disturbed by what you see. By all means, do NOT jump into solution-mode. I love this quote by James Thurber, “Let us not look back in anger or forward in fear, but around in awareness.” This is what we need to do as we seek to understand our aging parents.
  • Reach out to your Area Agency on Aging. Now that you have listened and observed, you will need to reach out and learn about options and resources. Every part of the country is covered by one of these agencies, funded by the federal government. They offer a hotline staffed by trained elder advisors. They maintain a comprehensive listing of community resources, and most now have a geriatric care manager on staff. No matter where you or your parent are in the country, you can go to their website and plug in a zip code to get the contact information for your Area Agency on Aging. Simply explain your parent’s need(s) and ask for assistance.
  • Reach out to a geriatric care manager. So, you’ve tried the listening and the observing. And, you reached out to your Area Agency on Aging and gathered resources and options. But, your parent will still not consider accepting help. Then it is time to have a professional step in and assist. Your Area Agency on Aging can recommend a geriatric care manager. This professional usually has a background as a social worker or nurse. Such individuals have the experience and sensitivity to meet with your parent in their home and do a holistic assessment (of your parent, their living environment, their support structure) and then make recommendations. They are trained to know that each elderly person and each family are unique in their needs and wishes. They will be able to frame their recommendations in a way that will help your aging parent understand it is in their best interest.

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Filed under adult children of aging parents, Alzheimer's Disease, assessments, care giving, care planning, caregiver burnout, caregiving, dementia, elder care raleigh nc, family meetings, Geriatric Care Management, Having a conversation, long term care planning, NC, Raleigh, senior care, sibling relationships, support groups

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